Long-Term Supports

Long-Term Supports and Services .People with disabilities often need long-term services and supports to assist us in activities of daily living and help us live as independently as possible.

The Coalition supports public policies that advance:

• Quality, integrated, home- and community-based service options available for all individuals with disabilities who need them.

• Individually driven programs that are sufficient in scope and flexibility to maintain recipients’ health, security and independence.

• Programs that enhance natural supports without overburdening them.

• Protections for the rights, autonomy and choices of the individual receiving services.

•Expanding eligibility and services through existing programs that work, including CHOICES, Employment and Community First CHOICES and the Family Support Program.

• Qualified, adequate workforce of direct support professionals and service providers with fair pay.

• Adapting Nevada’s system of care to provide services to more people, improve the quality of services and deliver them in a more efficient manner.

• Accountability through performance measures, contract monitoring and enforcement and transparency through public reporting.

Employment

Employment Only 27% of Tennesseans with disabilities are in the labor force. There are more than half-a-million working-age adults with disabilities in Nevada  who CAN work and WANT to work.

The Coalition supports public policies that advance:

• Competitive, integrated employment options for people with disabilities.

• Coordination between agencies that provide training and employment supports.

• The “Employment First” Initiative assisting the state of Nevada to align policies, regulations and funding priorities to encourage integrated employment as the primary outcome for individuals with significant disabilities.

Definition: Employment in the general workforce is the first and preferred outcome in the provision of publicly funded services for all working age citizens with disabilities, regardless of level of disability. The expectation is that people work.

Why is Employment First important in Nevada?
1. Statewide collaboration since 2010- Look at the data
2. Return on Investment
3. Quality of Life
4. Business Benefits
5. Department of Justice (1999 S.C. Olmstead decision) The Decision. On June 22, 1999, the United States Supreme Court held in Olmstead v. L.C. that unjustified segregation of persons with disabilities constitutes discrimination in violation of title II of the Americans with Disabilities Act.

• Benefits planning and awareness for youth as they transition from school to a career or additional studies.

• Protections for workers who experience a disability to retain employment.

You can read all the Employment First Policy for Nevada.

In Nevada::

  • 73.1% of persons without disabilities aged 18 to 64 are
    employed.
  • 39.2% of PwDs aged 18 to 64 are employed.
  • 357,035 persons in NV have a disability.
  • 8,200 persons aged 16 to 20 have a disability.
  • 171,600 persons aged 21 to 64 have a disability.
  • Voc. Rehab. received 3,169 applicants in NV in 2012.3
  • Voc. Rehab. obtained 852 jobs for PwDs in NV in 2012.
  • In 2012, NV’s total expenditure on SSDI benefits was $927,480,000.

 

NV Ages 6 to 21 Served Under IDEA 2011 2012
All Disabilities 41,519 42,285
Specific Learning Disability 22,105 22,261
Speech or Language Impairment 6,348 6,444
Intellectual Disability 1,934 1,883
Emotional Disturbance 1,928 1,881
Multiple Disability 1,013 1,072
Hearing Impairment 453,442
Orthopedic Impairment 291,280
Other Health Impairment 3,676 3,883
Visual Impairment 144,139
Autism 3,448 3,820
Deaf Blindness 5 8
Traumatic Brain Injury 174,172
Developmental Delay Omitted Omitted
Source: Annual Disability Statistics Compendium

Prevalence of Disability Among
Non-Institutionalized People Ages
16 to 20 in Nevada in 2012

*Total numbers reported Source: Cornell University & (Respectability 2015)

Employment of Non-Institutionalized
Working-Age People (Ages 21 to 64) by
Disability Status in Nevada in 2012


*Total numbers reported Source: Cornell University& (Respectability 2015)

Employment of Non-Institutionalized
Working-Age People (Ages 21 to 64) by
Disability Status in Nevada in 2012


*Total numbers reported Source: Cornell University & (Respectability 2015)


 Who Hires in Nevada?

The biggest industries in the state are leisure and hospitality -which employ 302,000 workers-, trade transportation and utilities -which employ 208,800 workers-, and professional and business services – which provide jobs for 136,900 workers.

The facts are that PWD who live in communities in an independent home or apartment had the highest numbers of community-based paid jobs (26.1%), whereas people living in institutions had the lowest rates (2.2%) of community employment. It makes sense to allow people to live in the community in Nevada.

PEOPLE WHO DO NOT HAVE  COMMUNITY JOBS BUT REPORT THAT THEY WOULD LIKE TO HAVE ONE (YEAR 2011-12)
Almost one half (45.6%) of people interviewed who were reported to not have a paid job in the community
indicated that they would like to have one. However, only 13.1% of those without a community job had
employment identified as a goal in their individual service plans (ISP). Furthermore, only 26.0% of people who did not have a job and stated that they would like work had this goal documented in their service plans.
Source: (Human Services Research Institute, 2014) & (Respectability 2015)

Hiring in Nevada

NEVADA HIRING EMPLOYMENT PARTICIPATION FOR WORKING-AGE PEOPLE (AGES 16-64)
2006 2007 2008 2009 2010 2011 2012
Number of people with a cognitive disability


Number of people with a cognitive
disability who are employed

Percentage of people with a cognitive disability who are employed

Source: (Butterworth, et al., 2014) & Respectability 2015

The percentage of people with a cognitive disability who were employed declined since 2006 and
increased slightly between 2010 and 2012. There were about 25% of people with cognitive disability
who were employed in 2010, 2011, and 2012

NEVADA PROGRAMS EMPLOYMENT AND WORK INCENTIVE PROGRAM PARTICIPATION FOR SUPPLEMENTAL SECURITY INCOME (SSI) BENEFICIARIES

2000 2002 2004 2006 2008 2010 2012  SSI recipients with disabilities who received Plans for Achieving SelfSupport (PASS) benefits 8 8 4 – 3 – 4 SSI recipients with disabilities who received Impairment Related Work Expenses (IRWE) benefits 25 25 25 19 13 10 11 SSI recipients with disabilities who received Blind Work Expenses (BWE) benefits 23 19 13 13 15 15 10

Source: (Butterworth, et al., 2014) SSI recipients with disabilities and who received benefits from PASS, IRWE, BWE had decreased since the year 2000. The number of those who received benefits in 2012, decreased by at least 50% compared to the year 2000. & Respectability 2015

NEVADA PROGRAMS
INTELLECTUAL AND DEVELOPMENTAL DISABILITY (IDD) AGENCY OUTCOMES BY EMPLOYMENT SETTINGS
2004 2007 2008 2009 2010 2011 2012


Source: (Butterworth, et al., 2014)& (Respectability 2015)

As the population grew, the percentage of those served in integrated employment stayed between the range of
20% to 23%. The number of people on wait list for day and employment services increased from 281 in 2011, to
497 in 2012.

Source: (Butterworth, et al., 2014) Average annual earnings for those with cognitive disability increased over the years to $25.4 thousand in 2012 & (Respectability 2015)

SSI recipients with disabilities and who received benefits from PASS, IRWE, BWE had decreased since the year 2000. The number of those who received benefits in 2012, decreased by at least 50% compared to the year 2000.

 

Source: (Butterworth, et al., 2014)& (Respectability 2015)

Funding for integrated employment declined to $3.7 million since 2010, when it was the highest at $4.3 million. Total funding for all IDD agency services steadily increased to $25 million in 2012.

Source: (Butterworth, et al., 2014)& (Respectability 2015)

 

STATE VOCATIONAL REHABILITATION (VR) PERFORMANCE: FISCAL YEAR 2013 PERFORMANCE OF COMBINED VR AGENCIES (FY 2013)

Nevada
Number of Eligible Individuals 3,727
Number of Eligible Individuals per Million of State
Population
1,336
Number of Plans 3,467
Number of Cases Closed with Employment 749
Rehabilitation Rate 49.1%
Percent Transition Age 26.9%
Percent Working 35 or More Hours per Week 51.2%
Mean Hourly Wage $11.72
Percent Closed in Supported Employment 5.9%
Mean Cost per Rehabilitation $4,100.50
Source: (Office of Special Education and Rehabilitative Services, 2013) & (Respectability 2015)

Source: (Nevada Legislative Counsel Bureau, 2015) & (Respectability 2015)

Source: (Nevada Legislative Counsel Bureau, 2015) & (Respectability 2015)

Education

Education Every child should have access to an education that prepares him or her for positive long-term outcomes including gainful employment and meaningful community involvement.

The Coalition supports public policies that advance:

• Early intervention services for children with delays and disabilities as young as possible.

• Equal access to the general education environment and curriculum.

• Safe, inclusive classrooms that put the student first.

• Parent-professional relationships with quality, regular communication.

• An IEP and 504 process that engages all stakeholders at the table.

• Protections for students to access the special education services they need in all education reform initiatives. • Protections for students from improper restraint and isolation practices.

• Higher expectations for student outcomes and accountability for our schools to get them there.

• Services for students who are transitioning from school to a career or additional studies.

• Opportunities for post-secondary education and training.

NEVADA SPECIAL EDUCATION FUNDING COMPARED TO OTHER STATES OR MOUNTAIN WEST STATES
Top 5 States providing State Funding Dollars per Student in Special Education
States State Dollars per Student in Special Education
Hawaii $21,336.80
Vermont $11,103.59
New York $8,059.82
Connecticut $7,599.89
Minnesota $7,113.55
National Average $2,621.38
Nevada $2,266.06
Sources: (U.S. Census Bureau, 2014)and (U.S. Department of Education, Institute of Education Sciences, National
Center for Education Statistics, 2013).
There were 16 states, including the District of Columbia, which did not provide state funding for students enrolled in special education (students served under IDEA). Nevada ranked 21 in spending per student in special education, out of the 50 states.

Source: (Respectability 2015)

 

Civil Rights

Civil Rights Access to civic life is a fundamental part of American society. The rights of persons with disabilities are as important as those of our peers. The Americans with Disabilities Act (ADA) prohibits discrimination against people with disabilities and represents a foundation on which we continue to build new opportunities for our community.

Voting Rights

We support and empower Nevadans with disabilities to take an active role in public policy.

We do not support efforts to limit access to the polls. We will work on programs to successfully get more PWD’s in Nevada to re

According to the U.S. Census Bureau there are 54 million Americans with disabilities, most of voting age. Since the passing of the Help America Vote Act (HAVA) in 2002, there have been great advances in the accessibility of voting for people with physical, perceptual, communicative and cognitive disabilities. Still, for many with disabilities, the voting process is technically challenging, socially uncomfortable and time consuming.

The introduction of Voter Identification laws to protect elections have also introduced a challenge for many people who have limited resources and access to transportation.

Published in January 2014, “The American Voting Experience,” a report and recommendations from the Presidential Commission on Election Administration finds that not everyone with the legal right to vote is able to exercise it. In addition to polling places that were easily identified as inaccessible, concerns around the accessibility of electronic voting equipment were listed. Some of their recommendations include training for pollworkers and and auditing system to ensure that they are able to implement what they learn. Read the pdf of the report at: https://www.supportthevoter.gov/files/2014/01/Amer-Voting-Exper-final-draft-01-09-14-508.pdf

Transportation

Nevada Disability Coalition support efforts to increase options for accessible transportation across urban and rural Nevada.

Transportation and Housing Individuals with disabilities need accessible, reliable transportation to find and maintain employment and coordinate health care. Our ability to participate fully in our community is often hindered by lack of access to transportation.

Finding available and easy transportation to the polls is a barrier to voting for some people with disabilities. It is also a barrier to finding and maintaining employment, and adds challenges to coordinating health care. Accessible transportation is hard to find outside of Nevada major cities.

Driving yourself or taking public transit yourself allows a person with a disability  the independence to travel, work and live independently. Nevada has limited resources, which are often private and expensive, to teach drivers education to students with intellectual disabilities and new drivers who need accommodations to their vehicles.  Vocational Rehabilitation in Nevada has done a poor job on helping their clients with modifications apposed the success of other states.

 

Accessible Affordable Housing

We support the effort to create sufficient accessible, affordable housing and help promote education in Nevada through advocacy.

We support universal design and the visitability effort.

There is not enough accessible, affordable housing in Nevada. Since Nevada is mostly a rural state small communities are left with little or no accessible housing.  Larger cities like Las Vegas, Reno and Carson city have issues also that this coalition will address. With many Nevadans who  have disabilities their earnings are very little  and they lack the means the finances that restrict earning.  Nevada’s cost of rent and real-estate have increased which puts those PWD’s without options.

As Seniors age and experience disability, there are many who are forced to leave their homes because they have become too restrictive for accommodations or aides such as mobility devices. The sudden onset of a disability can mean a costly home modification is necessary or that the entire family must move. This is common in all areas of Nevada.

There is a history of discrimination against people with disabilities in our search for housing. Fair Housing Discrimination Complaints on the basis of disability are far too common even today our coalition will work on education of the public and working to help communities increase accessible housing for people with disabilities.

Healthcare

 

Healhcare

Health Coverage and Benefits for People with Disabilities (PWD), Seniors with Disabilities (SWD) & Children with Disabilities (CWD) is lacking at the state level and federal level. Improving access and services for this population is the key to keeping people in their communities in Nevada and saving the government money in the future.

The health care system in the United States is complex, highly fragmented, and sometimes overly restrictive in terms of program eligibility. This leaves some people with disabilities with no health care coverage and others with cost-sharing obligations and limits on benefits that prevent them from obtaining health-preserving prescription medications, medical equipment, specialty care, dental and vision care, long-term care, and care coordination.

People with disabilities experience significant health disparities compared with people who do not have disabilities. Most Insurance providers are focused on disability and disease prevention instead of improving access to the quality and access to care for people with disabilities. This is a reason that PWD, SWD and CWD

The Coalition supports public policies that advance: • 100% health care coverage for all Nevadans.

• Early screening and detection for all children.

• Barrier-free access to quality, affordable behavioral and physical health care and specialized services for all Nevadans.

• Person and family-centered care and the medical home model.

• Data-driven outcomes and transparent systems of care.

• Protections for individuals with disabilities during vulnerable times including end of life decision-making.

Medicaid: Is essential for people and children with disabilities in Nevada.  NDC will progressively work on those issues that affect PWD in Nevada.

Medicare: Is also an essential for People who have Disabilities and Seniors with Disabilities in Nevada we will work with our National representatives to continue to find solutions.

The United States Senate may be close to the 50 votes needed to pass the American Health Care Act (AHCA) which the U.S. House of Representatives passed on May 4th, 2017. This legislation slashes programs that help people get health coverage.

According to the U.S. Census Bureau, in 2005, of the 291.1 million people in the non-institutionalized population, 54.4 million (18.7 percent) had some level of disability, and 35.0 million (12.0 percent) had a severe disability.

From the National Council on Disability and U.S. Census Bureau

  • Physical disabilities tend to be more common than sensory or mental health disabilities. African Americans and Hispanics typically experience disability at a higher rate than do whites.
  • Rates of disability also increase with age; 41.9 percent of individuals over the age of 65 report disability, compared with 18.6 percent of people who are younger. Further, the numbers of older persons are expected to grow substantially during the next several decades.
  • By 2030, the number of persons aged 65 years and older will rise to 69.4 million, from 34.7 million in 2000. By 2050, the number of individuals aged 85 and older will also increase significantly, to 18.2 million, from 4.3 million in 2000.
  • Death rates from conditions such as heart disease are decreasing, which accounts for both the increase in life expectancies and an increase in the number of people who experience chronic disabilities, including arthritis, which is the leading cause of disability among adults.